Event helps those with arthritis, like Anna, 7 – Hudson Hub
by Laura Freeman | Reporter
Akron — The 14th annual Red White on Thursday Night event to benefit the Arthritis Foundation will take place Jan. 27 at 5:30 p.m. at the John S. Knight Center in Akron.
For John and Megan Faust of Hudson, the Arthritis Foundation fundraiser is personal.
Their daughter, Anna, 7, was diagnosed with juvenile rheumatoid arthritis when she was 18 months old.
In order for her to enjoy normal childhood activities, Anna receives a shot once a week, a monthly intravenous treatment with a biologic drug and blood tests every eight weeks. Anna is also closely monitored for blindness, another side effect of arthritis.
In juvenile rheumatoid arthritis, the immune system attacks the joints, causing inflammation and abnormal bone growth, Megan Faust said. The joints become swollen and painful.
In addition to taking medication, Anna undergoes physical therapy and is encouraged to be active.
Anna is one of approximately 300,000 children in America that have arthritis and related diseases, according to Mary Kudasick, president and CEO of the Arthritis Foundation, Northeastern Ohio Chapter. In Northeast Ohio 1.5 million people suffer from arthritis.
Since Anna’s diagnosis, the Fausts have looked to the Arthritis Foundation for support from other families, information about JRA and various treatment options.
The Red White on Thursday Night event on Jan. 27 will benefit the local chapter of the Arthritis Foundation. It is a strolling wine and food event that includes raffles and live and silent auctions.
Tickets are $85 in advance or $95 at the door. VIP tickets are $125 each. Tickets can be purchased by calling 800-245-2275 ext. 105 or at redandwhiteonthursdaynight.eventbrite.com.
For more information regarding the Arthritis Foundation, visit http://
northeasternohio.arthritis.org.
E-mail: lfreeman@recordpub.com
Phone: 330-688-0088 ext. 3150
Article source: http://www.hudsonhubtimes.com/news/article/4967599
Juvenile Arthritis Weekend 2008
The annual Juvenile Arthritis Weekend was held on February 23-24, 2008 at the Great Wolf Lodge in Williamsburg, Virginia. This event is coordinated by the Arthritis Foundation and reaches communities in and around Virginia. The weekend is a great opportunity for families living with Juvenile Arthritis to meet other families with similar challenges, learn from experts in the field and have fun together. Go to www.arthritis.org for more information about arthritis and how you can be a part of …
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My story-JRA-juvenile rheumatoid arthritis
This about my JRA. I know the toll JRA can take on someone physically and emotionally. There are times when I do get depressed, but I just look on the brighter side of things.
Duration : 0:2:18
Another Hope: Rheumatoid Arthritis Infusion Therapy (2008)
http://creakyjoints.org
This 12-minute video captures the feelings and experiences of Elizabeth, a rheumatoid arthritis (RA) patient, undergoing infusion therapy, as she regains a more normal lifestyle, and decides to compete in her first triathlon. Hosted by CreakyJoints.org co-founder and person with arthritis, Seth Ginsberg, this upbeat DVD is used by physicians, nurses, patients, and care partners to educate and inspire.
“This DVD video is an essential component for any IV infusion site, in a physician’s office, or in a hospital setting. Short of hands-on therapy, it is the best clinical aid I’ve encountered in my 32 years of practice.”
- Matthew er, MD, FACR
Peabody, Mass.
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EXECUTIVE PRODUCERS
Seth Ginsberg
Louis Tharp
HOST
Seth Ginsberg
CAMERA
Richard Tjoa
EDITOR
WRITER / POST-PRODUCTION
Joseph Wohlhieter
CONSULTING PSYCHOLOGIST
Dr. Laurie Ferguson
SUBTITLES
Stefan Bill
Christine Garrabrant
Alexey Salamakha
Joseph Wohlhieter
MUSICAL SCORE
Joseph Wohlhieter
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SPECIAL THANKS TO:
The following people from the
Hospital for Special Surgery
535 East 70th Street
New York, NY 10021
Linda Leff, R.N., B.C.
Linda A. Russell, M.D.
Stephen A. Paget, M.D.
Phyllis M. Fisher
Tracy Hickenbottom
The following people from
Cowan, DeBaets, Abrahams & Sheppard LLP
41 Madison Ave.
New York, NY 10010
David B. Wolf
Robert Freedman
The following person from
Bernstein & Drucker, P.C.
450 7th Ave.
New York, NY 10123
Myra Bernstein Tweedy
and
ELIZABETH
Triathlete
Writer
Rheumatoid Arthritis patient
—–
This DVD was made possible by a grant from Genentech, Inc. and Biogen Idec.
Join the fight against arthritis: CreakyJoints.org
Duration : 0:10:59
Juvenile Rheumatoid Arthritis – JRA
Beth Gottlieb MD Ped Rheumatology wwwDrMDK.com
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